President Muizzu Returns Thalassemia Control Act Amendment to Parliament for Revisions

President Dr Mohamed Muizzu returned an amendment to the Thalassemia Control Act to parliament for further revisions, choosing not to ratify it yesterday.

The proposed amendment aimed to introduce a mandatory pre-marital programme for thalassemia carriers. Initially presented on 23 June, the bill received parliamentary approval on 6 August. The President’s Office said the bill was sent back following feedback from the Maldivian Blood Services and thalassemia carriers and their families, who suggested refinements to the legislation.

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The President’s decision underscores a focus on ensuring the law fully achieves its objectives and that thalassemia services are provided through a comprehensive national system. Under current legislation, individuals at risk of having children with thalassemia are not required to complete a pre-marital programme.

The amendment, proposed by PNC MP Ahmed Naseer on behalf of the government, sought to add provisions to Article 11 of the Thalassemia Control Act. It would require couples intending to marry to submit thalassemia test results to the marriage registrar. Couples identified as being at risk of having children with thalassemia would only be allowed to marry after completing a specified programme designed to meet regulatory requirements. The amendment also outlined who must participate in the programme and the components involved.

Additionally, the bill specified the appointment and responsibilities of the Director General of the Thalassemia Centre. The position would be appointed by the Civil Service Commission, under the guidance of the Health Minister, for a five-year term. The amendment emphasised the Director General’s accountability and obligation to act on the Minister’s advice.

Strengthening and expanding services for thalassemia patients remains a key priority for the President’s administration.